We are starting the blog again as a lot of people are asking questions on whats happening with Mireya now and how she is getting on and we thank everyone that asks about our little girl. Since having Our second beautiful baby. We have had a lot going on lots of hospital appointments, admissions to hospital and not really know where to turn for help and still looking for someone that will take Mireya's case on but least now we know what is the problem and we won't stop until we have got our beautiful little Miracle all the help and care she needs. Finding out the diagnosis We had a appointment at Sheffield children’s hospital on 28th February following a lot of blood tests Mireya had in December 2018 to try find out why Mireya wasn’t growing. We sat down me, Braiden, my mam and Nanny Lyn to get the result. The consultant explained that he would need to refer us to a genetics specialist as he didn’t know or heard of the problem before and it’s very rare only 1 in 125,000 ...