Thank you everyone for your kind lovely words when we posted about Mireya’s diagnosis of Rubinstein-Taybi Syndrome it honestly means so much to us. We posted just to raise awareness and let people know how she was getting on as a lot of messages we was getting it’s easier this way to update. We would like to say a huge thank you to all the trustees at the Showman’s Children’s Charity who have agreed to help fund Mireya’s Speech Therapy. We honestly can't thank them all enough for this. This last few week we have really felt the pressure and feel like we have been hitting our heads against a brick wall with no one knowing about Rubinstein-Taybi and not wanting to help Mireya it really has been difficult. Until Sunday 26th May i found another parent who's 4yr old has RTS on Instagram so i started messaging her she give me lots of advice and also added me to privately closed closed for people with RTS i added a post asking if anyone else had a children with the full EP300 gen...