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Off we go again 😱

I haven’t updated or wrote anything in a while as Mireya has and is still continuing to do so well since having her heart surgery. We have been enjoying every single moment of her and living a normal life with her. She may still be small but she is defiantly mighty. She is trying to walk standing on her own hitting all her milestones for her corrected age and we could not be prouder of our little miracle. We even got a little get away with my lovely Mam, dad  and James to Tenerife which Mireya loved just as much as us.

On Thursday 6th September we got up excited to go away and just as we was getting ready to leave I got a unexpected phone call from Leeds hospital it was the liver consultants secretary to book Mireya in for surgery to remove the cyst that was found on my 20 week scan on Thursday 13th September I was in complete shock and broke down cause I just didn’t expect it as last we heard they was reviewing the cyst again. I give the phone to Braiden to talk as i couldn’t speak and just looked at our beautiful little girl thinking why does she have to go through this again. Braiden asked for the consultant to ring us and explain the surgery and everything to us as we didn’t have a clue what was happening.
We decided to still go away and to my surprise when we got to the airport my Mam dad and James was there to surprise me. Best surprise ever after the mornings phone call so off we went for 4 little days away Mireya loved it we loved it. On the Monday we was flying home at tea time and in the morning the consultant rang we finally got to ask the questions.
He has said they don’t know how long the operation will take could be couple of hours could be 12 hours  he has cancelled everything from 1:30pm to be in theatre as long as need to be with Mireya. There not sure if the cyst may have blood vessels from the bowel or liver if it does then they may have to take away half of the bowel away as the vessel will be damaged when cyst is removed ( hard to explain fully).
She will need a  feeding tube back in afterwards for 2-3 days and she will be on High dependency for couple days. How long we will be in for he doesn’t know depends what they do once there in surgery.  So we didn’t get the answers we was hoping for but at least we have had couple days to get our heads around things a little more

For us the unknown is the worst part where as with her heart we knew the operation was gonna be so many hours and what they was doing. But our little girl is a fighter and will power through this one again and hopefully this will be the last operation for our little miracle.



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