Skip to main content

Meeting with liver consultant

Today 23/4/18 we had a meeting with the liver consultant Mireya is under. There wasn’t much change with what we already knew we know it’s a large cyst and suggested that it’s connected to the liver. When Mireya was born the cyst tripled in size but since a scan in January it hasn’t grown it has stayed the same. All that’s changed since we found out about the cyst at my 20 week scan is it’s not a ovarian cyst as thought. The consultation was just to make sure Mireya hadn’t had any symptoms that suggest the liver not working properly  which she hasn’t had. After seeing the DR she then had a ultrasound scan which the DR is going to review the images and discuss Mireya in the meeting on Monday on what to do with regards removing the cyst he is also going to be in contact with the cardio consultant but the cyst removal 100% won’t be till Mireya is recovered and discharged from care after her heart surgery.

Last week was the first weight loss Mireya has had since she was born which worried us a little but this was due to the consultant upping one of her meds which drains the fluid from her body. She was weighed again today and now weighs 3.420kg (7lb 9oz).

On Thursday (19/4/18) Mireya had a detailed echo scan which is for Tomorrow (24/4/18) the big meeting between the cardio consultants and the heart surgery and Mireya’s case is getting discussed and hopefully a plan will finally get put in place for her having the surgery. The consultant said she will call us once the meeting is finished and they know what the plan is.

Comments

Post a Comment

Popular posts from this blog

Operation Day

I’m starting this post from the moment I opened my eyes at 5:15am I just stared at our beautiful little girl praying that today was the day she was going to have the operation that will be the making of her. I got dressed packed the campbed away and then Braiden come at 6am then followed was my mam & dad, jade, nanny Lyn and Emma all come to be there for us both and Mireya. They was there the day she was born and all there for another big day in our little miracles life. At 7:55am the nurse come for us to take Mireya to the theatre every kissed her and then we walked to the theatre me and braiden took our baby girl in. I sat her on my knee and a mask was placed over her mouth and nose and within 20 seconds she was a asleep we laid her on the bed &  both give her a kiss  and then walked out. It was the hardest thing we have ever had to do walk away and leave our little girl there. We went back to the ward got our things and took them to the car until we get our paren...
Post a Comment
Read more

Off we go again 😱

I haven’t updated or wrote anything in a while as Mireya has and is still continuing to do so well since having her heart surgery. We have been enjoying every single moment of her and living a normal life with her. She may still be small but she is defiantly mighty. She is trying to walk standing on her own hitting all her milestones for her corrected age and we could not be prouder of our little miracle. We even got a little get away with my lovely Mam, dad  and James to Tenerife which Mireya loved just as much as us. On Thursday 6th September we got up excited to go away and just as we was getting ready to leave I got a unexpected phone call from Leeds hospital it was the liver consultants secretary to book Mireya in for surgery to remove the cyst that was found on my 20 week scan on Thursday 13th September I was in complete shock and broke down cause I just didn’t expect it as last we heard they was reviewing the cyst again. I give the phone to Braiden to talk as i couldn...
Post a Comment
Read more

BIG steps 🥰😊

sorry it’s been a while since I have updated the blog. We have had lots of appointments lots of hurdles and a lot of up and down days but onwards and upwards. Our 2 little girls are the sunshine of our lives 🎀🎀 In July Mireya had another hearing test, she still has lose of hearing in her right ear but there going to leave it till November and then if its still the same then we will have to discuss Grommets or Hearing Aids. We then had another eye test for Mireya and her vision in her right eye is very long sighter and slightly long sighted in her left eye so she now has glasses and we think she looks even more beautiful with them. They have give her glasses now to try provent her eyes getting worse or possible lazy eye. Since putting the glasses on in the opticians she hasn’t touched them she knows she can see better with them. As we walked out the opticians our eyes filled with tears watching her look at everything completely different as if it was the first time she had see the...
Post a Comment
Read more