Pre Op Assessment

today 15/5/18 Mireya had her pre op assessment at Leeds General. We first met with a nurse who went through a load of paperwork and told us a little what to expect once she comes out of surgery.
Then Mireya had a ECG, length & weight, bloods and then to finish off a chest X-Ray
The bloods is by far the worst part cause she is small it’s hard for them to get a good vein so after two nurses tried twice we ended up on the ward where the doctor managed to get the samples he needed to have her blood tests done and have the right blood ready for the operation.
We have also been given some special body wash and A nasal spray which we have to use 5 days before surgery this will help her skin be sterile and help the skin heal after surgery.
So once again we are set for going on Monday 21st for the operation on Tuesday 22nd. Fingers crossed it doesn’t get cancelled again.

ECG

Getting ready for Chest X-Ray

Chest x Ray

Bloods 🙈

Comments

Off we go again 😱

I haven’t updated or wrote anything in a while as Mireya has and is still continuing to do so well since having her heart surgery. We have been enjoying every single moment of her and living a normal life with her. She may still be small but she is defiantly mighty. She is trying to walk standing on her own hitting all her milestones for her corrected age and we could not be prouder of our little miracle. We even got a little get away with my lovely Mam, dad and James to Tenerife which Mireya loved just as much as us. On Thursday 6th September we got up excited to go away and just as we was getting ready to leave I got a unexpected phone call from Leeds hospital it was the liver consultants secretary to book Mireya in for surgery to remove the cyst that was found on my 20 week scan on Thursday 13th September I was in complete shock and broke down cause I just didn’t expect it as last we heard they was reviewing the cyst again. I give the phone to Braiden to talk as i couldn...

The call we have been waiting for

Yesterday 24/4/18 I woke up at 5am I could not sleep thinking about and hoping we get the phone call. We know what’s coming we just want to know WHEN! So by 9am all the washing and ironing had been done, Mireya’s bottles and syringes cleaned. And then I sat with our beautiful little girl. I was just staring at the phone just waiting the phone did not ring. Today 25/4/18 I rang Dr Barwick (cardiologist) secretary to find out what was happening she told me that Mireya had been discussed at the meeting and I needed to speak to a cardio nurse specialist she put me through to the nurse and she explained that the surgeons have agreed with the consultant that the 4 holes (2VSD’s, 1PDA & 1PFO) need closing as soon as possible. She then went on to explain Mireya had been put on the acute board which means priority and can be done in as little as 2-4 weeks. They didn’t schedule a date as yet for Mireya’s surgery as they are waiting for the Liver team to meet on Monday in case it could cause...

3 days after operation

Last 3 days have been long, emotional but at the end rewarding. On Thursday morning Mireya had de-satted a few times but this was due to her body inside been to warm and she was unable to settle. The nurses/doctors have been so shocked at Mireya cause she has been on that many sedation medications she should have been still and relaxed but Mireya been Mireya kept them on their toes she was still kicking and arms going everywhere trying to get the tubes out and three nurses had to hold her down. So they had to give her a really strong medication which paralysis the body just so she would settle to let her body rest and heal. On Friday she had a big desat it scared me she had to have a little bit of help from the nurses but after about 2-3mins she was back to herself as if nothing had happened. The doctors decided she wasn’t liking the ventilator tube so took the tube out to see how she would be then. And no one could believe it she was lovely and settled the best she has been since op...

Mireya means Miracle

Search This Blog